This story was sent to us by one of the loveliest moms in our cleft community in Port Elizabeth.

“Life played out differently despite being diagnosed with Systemic lupus erythematosus (SLE) and being told I would never have children of my own. When I was 31 years old I gave birth to our daughter. Six years later I fell pregnant again and our son was diagnosed with a bilateral cleft lip and palate. I was upset and confused. I had no idea what “bilateral cleft lip and palate” meant and regretfully I trusted our good old pal Google; Oh how I wish I hadn’t done that as it made things so much worst. I remember saying I will never love this child. Looking back I regret every word every ugly feeling within me. Hamza was born healthy and perfect in every way he is extremely active loves eating and his talent is to bring a smile and feeling of warmth to every person he meets. The day Hamza was born a transformation took place. I changed. I became stronger and happier. This super star “Hamza” brought about so much change in my life. Today I stand proud to be a mother of this amazing human.

I have learnt what works for me and my son and what doesn’t work. Nothing in life works out how anyone says it will. It’s up to you as a mummy to realise that this is your blessing this is your purpose and you decide to be positive or negative about the cleft journey. When mummy is happy, baby is happy. Having a baby affected by cleft lip and palate has taught us to love unconditionally to have patience and enjoy every moment. We have learnt to take one day at a time. We have a long journey ahead of us but we will be strong for our son.”

Nasreen
xxx

If you or your loved one is cleft affected feel free to email your photo and story to us at info@cleftfriends.co.za. We want to share encouraging stories and create awareness about cleft lip and palate in South Africa. You are not alone!

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